At what age were you or your loved one officially diagnosed with Ehlers-Danlos Syndrome (EDS)?

How much time do you spend per week researching, discussing, participating in social media, etc., related to Ehlers-Danlos Syndrome?

Do you feel as though you are a stronger person as a direct result of your EDS experience?

Has EDS ever interfered with your work life or educational endeavors?

With what type(s) of EDS have you been diagnosed?

Have you been diagnosed with Dysautonomia? (Including Postural Orthostatic Tachycardia Syndrome, Neurocardiogenic Syncope, Orthostatic Intolerance, Familial Dysautonomia, Neurally Mediated Hypotension, Pandysautonomia, Autoimmune Autonomic Ganglionopathy, Multiple System Atrophy)

Have you been diagnosed with Chiari Malformation?

Have you been diagnosed with Cranio-Cervical Instability (CCI)?

In the past 30 days, how often did you experience a headache?

What is your experience with migraines?

Have you ever been genetically tested for Ehlers Danlos Syndrome? Why or why not?

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