welcome to oneEDSvoice

- a positively charged Ehlers Danlos Syndrome community.
  • join today!


One thing I don’t really discuss is my childhood with an incorrect diagnosis, but it’s time for that to change. I should start by saying that I may have anger towards the doctors that misdiagnosed me, but in no way do I blame them. It’s not their fault that they did not recognize a rarely known genetic disorder. I know that my doctor was doing what she believed was best for me.

For the majority of my childhood, no one believed that my pain was real. No one could see it. I was accused of faking, exaggerating, and manipulating. At age seven, I began seeing a psychiatrist and was diagnosed with anxiety and depression. Those diagnoses were accurate.

expertly curated content related to this topic