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Special Like Me… Ehlers-Danlos Syndrome (EDS)
Uniquely designed to assist parents, caregivers, and professionals to facilitate conversations with children who have Ehlers-Danlos Syndrome (EDS), this book is about a little boy’s journey from bumps and bruises to diagnosis and beyond. The goal is to show EDSers and other children they are beautiful and amazing people and that they can manage anything they set their mind to.
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Bilateral Lung Transplantation in a Patient With Vascular Ehlers-Danlos SyndromeWe describe the case of a 29-year-old wo...
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Brighton College Student Earns 4 A+ While Taking on the Role of Full-time Caretaker for Mother with EDSAn 18-year-old student has achieved four...
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My Disability | Ehlers Danlos Syndomehttps://www.youtube.com/watch?v=q7rRrV5y...
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Riboflavin Corneal Crosslinking for Brittle Cornea Syndrome and Ehlers-Danlos Syndrome Type VIBrittle Cornea Syndrome and Ehlers-Danlo...
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Association between EDS and Gut Problemshttps://www.youtube.com/watch?v=qR0vHXdc...