welcome to oneEDSvoice

- a positively charged Ehlers Danlos Syndrome community.
  • join today!

My Search for Acceptance as a College Student With Ehlers-Danlos Syndrome


I have Ehlers-Danlos syndrome. My parents thought it would be good for me to live on campus my freshman year, to gain that college experience. And for the most part, I agreed with them. My biggest concern was either finding a roommate who would understand my situation, or not having a roommate at all. My problem was that my university was very persistent about me needing to have a roommate. I wasn’t in a wheelchair, so they thought I must be able to live with someone just fine. They were wrong.