welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
The price of celebrating the holidays when you have chronic pain
I am often asked why I keep myself to such a strict schedule and seem rather private during the holidays. It’s true. I have a routine I follow daily. I know my body can handle between eight and 10 hours of activity on a good day and even less on a moderate or bad day. I know I can only drive for an hour before my pain starts to escalate and if I miss my medications by more than 30 minutes, I will deeply regret it. But, the holidays bring family and friends to visit and parties for work and personal occasions, holiday shopping and cooking, among other traditions, and every year I have to pace myself.
Albeit true that the holidays only come around once a year, I would love to see so and so, going out to eat is more fun than my couch and I can push myself well past my limits, these responses pose a number of challenges for me, especially being newly engaged and trying to manage blending two families and friend groups together.
expertly curated content related to this topic
-
What you can’t see about my life with Ehlers-Danlos SyndromeI don’t remember everything about my d...
-
Ehlers-Danlos Syndromes (Inspire)Ehlers-Danlos support group and discussi...
-
You Know You Have Ehlers-Danlos Syndrome When…After three of my kids and I were diagno...
-
Don’t write off these symptoms as “just anxiety”When Rachel Romu, a 24-year-old from Tor...
-
My Old BonesDisabled teenager Kaylee Grace examines ...
-
Arianna Pflederer: My Ehlers-Danlos Syndrome Diagnosis Storyhttps://www.youtube.com/watch?v=fysY46RJ...
-
Why My Chronic Illnesses Make It Difficult for Me to Get Out of Bed Every MorningEvery morning, I wake up and refuse to o...