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He Knew I Could Die, and He Married Me Anyway


When I was just 26 years old, I found myself walking out of a genetics clinic with a diagnosis of Ehlers-Danlos Syndrome (EDS) — a group of disorders that affect the connective tissues (which support the skin, bones, blood vessels, and other organs and tissues). Symptoms vary from mildly loose joints to life-threatening complications.

From that day on, my life was forever changed. Since not much research had been done on EDS, I was overwhelmed with fear. Reality was proving to be more difficult than I had ever imagined. I could die from this.