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Inside the Mind of Someone With Hypermobile EDS at Night


As an occupational therapist with hypermobile Ehlers-Danlos syndrome, “painsomnia” (pain-induced insomnia) is something I come across a lot. I work with a lot of people who have pain and I also live with it. In fact, I had no idea chronic pain wasn’t normal until I was 19. I genuinely thought everyone was in pain all the time. Pain is my “normal” so it must be the same for everyone right? Seems not.

Still there are some benefits. Living life as a patient taught me a lot about being a healthcare professional. Anyway, back to painsomnia.