In the Fringes | oneedsvoice

welcome to oneEDSvoice

- a positively charged Ehlers Danlos Syndrome community.
  • join today!

In the Fringes


I have EDS hypermobility type, also known as (Joint) Hypermobility Syndrome (HMS) and a few other things, mostly secondary to or related to EDS. I live in Wiltshire, U.K. with my husband, daughter and our cats Nimitz and Jade (who has feline cerebellar hypoplasia.) This is my personal blog.

I started this blog in December 2008 for two main reasons.
1. I wanted to share what it was like living with a serious, incurable condition that impacts on every aspect of life because I regularly encountered so many misconceptions, criticism and misunderstanding.
2. I wanted to contribute something and help. I didn’t have money or time to give – I couldn’t donate or volunteer at a charity (something I’ve done in the past), but I could help raise awareness for a number of grossly misunderstood and underdiagnosed conditions – Ehlers-Danlos/Joint Hypermobility Syndrome, POTS, APD, Brittle Asthma Type 2 (now called something else vague), refractory chronic migraine.

expertly curated content related to this topic