welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
When your illness has been ruling your life without you knowing it
Three days before my 30th birthday, I hit a wall. I was nearly five months in to my initial diagnosis of hypermobile Ehlers-Danlos syndrome (hEDS). I was 11 days removed from the geneticist-confirmed diagnosis. I was spent. I had no good energy left to give, to myself, let alone to anyone else.
Years ago, I wrote a research paper on food allergies and learned that sometimes people have aversions to things that they are allergic to. I think it works the same way with good energy. Before I was diagnosed with hEDS, I unconsciously shunned what didn’t give me life. Was I avoiding what I didn’t need because I knew I didn’t have the good energy to waste? When you’re diagnosed with a chronic condition, which on some days saps you of every ounce of energy you have, you can’t waste good energy.
expertly curated content related to this topic
-
The Power of Believing Yourself When You Have an IllnessI didn’t always feel believed by my te...
-
It’s not in my Head’: Hope for Sufferer of Rare Joint DisorderGendi Roberts was just eight years old w...
-
A Large Abdominal Intercostal Hernia in a Patient with Vascular Type Ehlers-Danlos Syndrome: A Surgical ChallengeA patient with vascular type Ehlers-Danl...
-
It’s Time for an Honest Conversation About Pain ManagementPsoriatic arthritis can be a debilitatin...
-
Melanie Welcomed Home from Spinal Surgery in BarcelonaA 27 year-old from Cramlington says she ...
-
Ehlers Danlos Syndrome (patientslikeme)We’re all in this for good. By sharing...
-
You know you have EDS when…Welcome to the world of bizarre things t...
