welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
My fears after losing fellow warriors to vascular Ehlers-Danlos Syndrome
It’s been a while since I have written anything worthy of sending out into the world about vascular Ehlers-Danlos syndrome. In fact, my mind has been elsewhere. The demon that lays in wait has been pushed to the back of my mind for quite some time, dormant.
Of course it is still there, festering in the deepest, darkest corners of my neuro-network, waiting to raise its ugly head again, either physically or mentally. So far I have managed to keep it at bay, my thoughts preoccupied. I’ve been getting on with my life, making plans, continuing as normal like it’s not there. When it has arisen at various times, I’ve beaten it down, pushed it back. But this war isn’t over.
expertly curated content related to this topic
-
Ehlers-Danlos Syndrome: ‘You Just Have to Keep Going’In 1981, Alexandra Lloyd was a 25-year-o...
-
To be Disabled, and Proud of it, and AliveMy name's Nicole and I'm a white 21 year...
-
Melanie Welcomed Home from Spinal Surgery in BarcelonaA 27 year-old from Cramlington says she ...
-
The Battle Between New Friends, Ehlers-Danlos Syndrome and GuiltFriendship is a topic that always seems ...
-
How to Help Schools Understand Ehlers Danlos SyndromeAs both a parent of 2 children with Ehle...
-
That Silver SpoonieHi, I'm a 25 year old Spoonie who's been...
-
Thunder Bay’s Rachel Romu Modelling after Diagnosis that Ended Athletics CareerA Thunder Bay, Ont., woman has turned a ...