My fears after losing fellow warriors to vascular Ehlers-Danlos Syndrome | oneedsvoice

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My fears after losing fellow warriors to vascular Ehlers-Danlos Syndrome


It’s been a while since I have written anything worthy of sending out into the world about vascular Ehlers-Danlos syndrome. In fact, my mind has been elsewhere. The demon that lays in wait has been pushed to the back of my mind for quite some time, dormant.

Of course it is still there, festering in the deepest, darkest corners of my neuro-network, waiting to raise its ugly head again, either physically or mentally. So far I have managed to keep it at bay, my thoughts preoccupied. I’ve been getting on with my life, making plans, continuing as normal like it’s not there. When it has arisen at various times, I’ve beaten it down, pushed it back. But this war isn’t over.