Ehlers-Danlos Syndrome: The Lengthy Road to Diagnosis | oneedsvoice

welcome to oneEDSvoice

- a positively charged Ehlers Danlos Syndrome community.
  • join today!

Ehlers-Danlos Syndrome: The Lengthy Road to Diagnosis


For people with Ehlers-Danlos syndrome, a genetic disorder affecting the strength of collagen that provides the body support, structure, and stability, the road to diagnosis can be lengthy. The reasons for this can differ from person to person, but are often related to confusion over the multiple types of Ehlers-Danlos syndrome and the many signs and symptoms associated with the condition.  We most frequently see the hypermobile type of Ehlers-Danlos Syndrome (EDS-HT) in our Connective Tissue Clinic.

expertly curated content related to this topic