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- a positively charged Ehlers Danlos Syndrome community.
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To be Disabled, and Proud of it, and Alive

My name’s Nicole and I’m a white 21 year old spoonie with EDS and a ton of other illnesses.

An abled person who has never heard of your illness, and does not know even the very basics of your illness has more of say in how your illness is handled/treated and believed in your profession/school/hospital/life than you, the disabled person, for the simple fact that they are abled, and society values their opinion more. Whether it is because they assume the disabled person can’t answer for themselves, which is ableist, or they in general just feel like the opinion of an abled person is more solid, more believable, and for some reason, more educated than the actual person who is actually handling the illness.