welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
An Accident Waiting to Happen: A Life with Ehlers Danlos syndrome
The doctors said I had unconfirmed haemophilia. People said I was clumsy, a clown, an accident waiting to happen. They were wrong. I have endured a multiplicity of injuries including: 200 stitches; a broken femur; broken bones in my feet; 3 sprained ankles; several dislocated kneecaps; ruptured knee ligaments; a broken scaphoid; traumatic bruising to my shin and a dislocated shoulder. These are the presents that EHLERS DANLOS SYNDROME bestowed upon me. At fifty eight years of age I had had enough. I lay on the floor in my garage with the fallen ladder as my companion, listening to the siren of an approaching ambulance. I thought to myself “I have to find a way to make all this stop. If I survive.”
expertly curated content related to this topic
-
5 Things Chronically Ill People Would Love to HearAs a person with a rare chronic illness,...
-
To be Disabled, and Proud of it, and AliveMy name's Nicole and I'm a white 21 year...
-
Travelling with Ehlers Danlos Syndrome: how to make your holidays smoothWe all know that travelling with a disab...
-
The realities of life with Ehlers-Danlos SyndromeIt wasn’t that long ago, about four ye...
-
Robot Helps Young Girl with Ehlers Danlos Syndrome Experience the Outside WorldA rare genetic disorder often prevents 1...
-
Help in School: Victoria Graham is Turning Invisible Illness into Public AwarenessLooking at Victoria Graham, you would ne...
