welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
15 year old with Ehlers Danlos, “I feel beautiful, even with my feeding tube”
Emily Jones is 22, and is currently living with a feeding tube.
Growing up, she suffered from chronic joint pain, and at age 15 was diagnosed with Ehlers-Danlos syndrome (EDS) type 3, a connective tissue disease affecting her joints, muscles, skin and organs.
Doctors gave Emily a feeding tube because she couldn’t keep food or liquids down. It has been a huge challenge, but it hasn’t stopped Emily pursuing her passion for beauty blogging and make-up tutorials.
expertly curated content related to this topic
-
Robot Helps Young Girl with Ehlers Danlos Syndrome Experience the Outside WorldA rare genetic disorder often prevents 1...
-
Woman With EDS Fires Back After Being Accused of Misusing Disabled ParkingCameron McMillin has a form of Ehlers-D...
-
The US beauty queen making her invisible illness visibleVictoria Graham, a 22-year-old student f...
-
Zebras of Hope: A Guide to Living with Ehlers-Danlos SyndromeThis book was written for those diagnose...
-
Ehlers-Danlos Syndrome (EDS) Community (RareConnect)Ehlers-Danlos syndrome (EDS) is a geneti...
-
Ehlers-Danlos SyndromeThese three case histories illustrate th...
-
Why I’m Grateful My Invisible Illnesses Have Made Me a FighterAs many of you know, October is Dysauton...