welcome to oneEDSvoice

- a positively charged Ehlers Danlos Syndrome community.
  • join today!
patient education

The Unspoken Side of Ehlers-Danlos Syndrome

key information

source: The Mighty

year: 2016

authors: Kylee Anne

summary/abstract:

As a senior in high school and freshman in college (dual enrollment program), who has just recently began to feel the awful effects of my chronic illness, is working a part-time job, active in my church, and so much more, I am doing the best I can. The reality of it all though, is I hurt. Some days, I hurt so bad that between driving from college to high school, or high school to work, I turn on my worship music and I cry. But no matter what, I make it through each and every day and I do it without complaining. No matter how bad I feel, I keep a smile on my face and enjoy the little things in life.

This is raw emotion. It hurts. But through each and every day I enjoy the little things in life such as sunsets, the beautiful stars at night, the wonderful smell of coffee in the morning, the fall leaves that are finally turning, rainbows after a hard rainfall, rain on a hot day, and so much more, because those things keep me going.

read more

expertly curated content related to this topic