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patient education

Travelling with Ehlers Danlos Syndrome: how to make your holidays smooth

key information

source: Disability Horizons

year: 2015

summary/abstract:

We all know that travelling with a disability can be tricky, but by no means impossible. Here, Helen York, who has Ehlers Danlos Syndrome, which gives a person chronic pain, shares her top tips on preparing for a trip and making sure it goes smoothly.

When I told people I was going to Cambodia, I got a lot of quizzical looks and people asking; “how the hell are you going to cope?” Some of it is bloody minded stubbornness, but a lot of it is planning and preparing.

What to do before a trip?

  • If you’re going on a tour, make sure you let them know about your condition, any concerns, health and safety risks and your limitations. They need to know so they can plan accordingly. They may also require a health check from your GP.
  • Get insurance. Everyone should travel with health insurance, but if you have a chronic pain condition it is essential. I use a UK company called Fish, which is expensive but is OK with me being broken.
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