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Do Support Groups Really Help People With Chronic Illness?

key information

source: The Mighty

year: 2016

authors: Daisy B


I’m sure that in future years to come I am going to get asked this question quite frequently when mentioning that I live with Ehlers-Danlos syndrome and a range of other chronic illnesses: Do support groups help you with your chronic illness?

Well, I can’t speak for everyone, but after my dad and I attended our first meeting together, within two seconds of walking out the door, he said, and I quote, “I will never forget today.” My father does not have Ehlers-Danlos syndrome, or any other chronic illness, but it felt in that moment that we, as a whole group of six women fighting similar battles, we had been heard. But as an outsider looking in, my dad was kind enough to take the time and listen to the facts. And after that day, my invisible illness wasn’t so invisible anymore, to someone who had always envisioned me as healthy.

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