source: The Mighty
Before my diagnosis, doctors visits where filled with words such as “complicated,” “puzzling case,” “it’s in your head,” or “we just don’t know.”
These words only left me feeling discouraged, confused and frustrated. There are only so many times a person can cope with doctors throwing their hands up completely puzzled, only handing you a prescription that might help. Eventually I settled with the reality that there would always be unanswered questions.
But then the day came when a doctor said, “You have Ehlers-Danlos Syndrome (EDS).”
All my medical challenges had an explanation, and a prior misdiagnosis was erased from my medical chart. Those initial moments were filled with relief, but then the doctor stepped out of the office. The tears which had welled up in my eyes came rushing down my face. I felt alone both literally and figuratively. Despite living with the debilitating symptoms for many years, there was something about getting the official diagnosis that knocked me down. With tears in my eyes, I took slow, long breaths.