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The Love-Hate Relationship a Person With Ehlers-Danlos Syndrome Has With Their Bed

key information

source: The Mighty

year: 2016

authors: Meredith Grigsby

summary/abstract:

When you have a chronic illness and you think of comfort, one of the first things you think of is most likely going to be your bed. Rest is very important when dealing with any illness, so why would there be a love-hate relationship with your own bed? It all depends on the illness!

The illness I am facing is Ehlers-Danlos syndrome (EDS). EDS is a chronic condition that has to do with collagen. The collagen in my body is faulty and doesn’t do what it is supposed to and it wreaks havoc. Collagen is a protein found in connective tissue — it’s what holds our bodies together. Our tendons and ligaments do not hold our bodies together very well at all. Ehlers-Danlos patients are prone to chronic subluxations and dislocations and each patient is as different as a fingerprint.

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