Learning to Love the Skin I'm In With Ehlers-Danlos Syndrome | oneedsvoice

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Learning to Love the Skin I’m In With Ehlers-Danlos Syndrome

key information

source: The Mighty

year: 2016

authors: Sara Geurts

summary/abstract:

I’ll start out by saying I was not always comfortable or accepting of my disorder, Ehlers-Danlos syndrome, or the effects it has on my everyday life. Growing up, my family did not think there was anything specifically wrong with me, especially with it being branded as an invisible illness. I was consistently pushed to the sidelines when trying to cope and learn about the effects of Ehlers and my future with it. I was diagnosed around the age of 10 but had noticed my skin as early as the age of 7.

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