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Finding the Silver Lining in Life With Ehlers-Danlos Syndrome

key information

source: The Mighty

year: 2016

authors: Delaney Olsen

summary/abstract:

As cliché as it sounds, Ehlers-Danlos syndrome is like a box of chocolates. Some days you have the energy to attend a rock concert, buy a new puppy and go swimming with sharks. Other days you cannot make it out of bed. EDS is a perplexing and painful puzzle that constantly tests your faith. But those days where you have enough spoons left to conquer the world and come out on top? Those days make this a life worth living.

My most recent struggle has been the diagnosis of neurogenic thoracic outlet syndrome, a rare nerve disorder commonly found in us zebras. When I was younger, I joined a swim team after learning it would help my joint pain, and have continued until just recently. Unfortunately, last year I started having severe arm and shoulder pain, and I would lose feeling in my fingers.

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