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Why I Feel Like an Impostor in the Disability Seat on Trains

key information

source: The Mighty

year: 2016

authors: Christina Cerqueira

summary/abstract:

I have type III Ehlers-Danlos syndrome (EDS), a condition that’s led to everything from breakups to dance championships. You’ve probably never heard of EDS. I’ve never talked with another patient or had access to a specialist. Nobody knows what it looks like, so nobody recognizes it when it’s right in front of their face. It’s the reason I stare down people sitting in the priority seats (seats reserved for seniors and people with disabilities) on San Francisco’s public transit system.

EDS affects connective tissue, which holds your body parts together like glue. If normal connective tissue is made of Superglue, then mine is made of Elmer’s glue. My joints are hyper-flexible, at risk of dislocating and frequently cause me pain.

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