welcome to oneEDSvoice

- a positively charged Ehlers Danlos Syndrome community.
  • join today!
reference materials

Ehlers-Danlos Syndrome Treatment & Management

key information

source: Medscape

year: 2017

authors: Robert A Schwartz


Treatment for EDS is unsatisfactory.

One isolated report showed that patients with type VI disease benefited from oral vitamin C at 4 g/d. Scars and bleeding time seemed to improve with this treatment.
Rombaut et al performed a cross-sectional study of self-reported medication use, surgery, and physiotherapy in 79 patients with hypermobility-type Ehlers-Danlos syndrome (type III), finding that 73 patients (92.4%) were taking medication, 56 (70.9%) had undergone surgery, and 41 (51.9%) were currently receiving physical therapy. [31] The patients taking medication all took analgesics; many also reported using antidepressants. Severe pain was frequent; patients taking strong opiates made more complaints and experienced greater functional impairment than those using weaker analgesics.

read more