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patient education

Having Ehlers-Danlos Syndrome with family in town for the holidays

key information

source: The Mighty

year: 2016

authors: Elise Snyder


The holidays are something most people look forward to, but as an Ehlers-Danlos syndrome patient I have a love-hate relationship with the holidays. Most years were spent at a relative’s house, with me only having to provide one dish and spending the rest of my day sitting around masking my pain. That was until this year when I had to host Thanksgiving dinner.

Holidays can be difficult with family who doesn’t understand your illness. It can mean having to take the hits when they poke fun at you for “not doing enough” or “sleeping to long” or when they say, “You must not be ambitious enough since you don’t have a job.” The holidays can mean giving up your bed to be a good host, knowing good and well that any other bed will result in your ribs dislocating and your nerves lighting on fire.

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