welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
Ehlers-Danlos Syndrome: An Emerging Challenge for Pain Management
source: Vertical Health
year: 2017
authors: Tennant Forest, MD, DrPH
summary/abstract:EDS may be the most common genetic connective tissue disease to cause intractable pain, necessitating high-dose opioid therapy. It has also been known as the “hypermobility syndrome” (in circus terms—”the rubber man”) since these patients can displace their body extremities out of their joints (i.e, double-jointed). This disorder causes progressive deterioration and degeneration of connective tissue in joints, spine, eye, gums, teeth, internal organs, and central nervous system (CNS).
Patients with the severest form of this genetic disease seldom live past 50 years of age. Unfortunately, patients typically reach a point at which their connective tissue begins to fail in its ability and duty to stay attached to and upholds organs including tendons, ligaments, cartilage, spinal cord, brain, eye, teeth, and peripheral nerves. As the connective tissue deteriorates, painful micro-tears affect the organs and cause severe pain, essentially head-to-toe. Consequently, unremitting pain sets in, causing disability to such an extent that patients become bedridden or couch-bound.
read moreexpertly curated content related to this topic
-
Ehlers-Danlos Syndrome in a DogA 7-month-old, female Alaskan malamute, ...
-
Systematic Data-querying of Large Pediatric Biorepository Identifies Novel Ehlers-Danlos Syndrome VariantBACKGROUND: Ehlers Danlos Syndrome is a...
-
DEFY FoundationThe DEFY Foundation was created in 2014 ...
-
Ehlers-Danlos SyndromeBitterly trying to find some solace in p...
-
You know you have EDS when…Welcome to the world of bizarre things t...
-
Ehlers-Danlos syndromehttp://www.nhs.uk/Conditions/ehlers-danl...