welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
patient education
My Ehlers-Danlos Syndrome Diagnosis Gave Me Community and Peace
source: The Mighty
year: 2016
authors: Jennifer Peacock-Smith
summary/abstract:When I was diagnosed with Ehlers-Danlos syndrome (EDS) 18 months ago, I threw myself into the EDS world, the chronic illness world and the blogging world. I soaked up all the information I could find and shared my own journey in deep and vulnerable ways.
Without a diagnosis, I had spent 30 years in the lonely, barren wasteland of pain, anxiety, confusion and fear. Then when a diagnosis suddenly fell into my lap and all the hundreds, if not thousands, of medical anomalies in my life suddenly made absolute sense — right down to the smallest detail — my life changed for the better.
read moreexpertly curated content related to this topic
-
Ehlers Danlos Syndrome (EDS) My Storyhttps://www.youtube.com/watch?v=1s9v_DWC...
-
Abnormal Copper Metabolism and Deficient Lysyl Oxidase Activity in a Heritable Connective Tissue DisorderBiochemical abnormalities were studied i...
-
Clinical Reference Manual Vascular TypeEhlers-Danlos Syndrome (EDS) is a hetero...
-
Brighton College Student Earns 4 A+ While Taking on the Role of Full-time Caretaker for Mother with EDSAn 18-year-old student has achieved four...
-
In the FringesI have EDS hypermobility type, also know...
-
Journey to Health: A Holistic Approach to Ehlers Danlos SyndromeJourney to Health is a real look at what...
-
sarageurtsSara Geurts, 26 // Model // Thriving wit...