My Ehlers-Danlos Syndrome Diagnosis Gave Me Community and Peace | oneedsvoice

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My Ehlers-Danlos Syndrome Diagnosis Gave Me Community and Peace

key information

source: The Mighty

year: 2016

authors: Jennifer Peacock-Smith

summary/abstract:

When I was diagnosed with Ehlers-Danlos syndrome (EDS) 18 months ago, I threw myself into the EDS world, the chronic illness world and the blogging world. I soaked up all the information I could find and shared my own journey in deep and vulnerable ways.

Without a diagnosis, I had spent 30 years in the lonely, barren wasteland of pain, anxiety, confusion and fear. Then when a diagnosis suddenly fell into my lap and all the hundreds, if not thousands, of medical anomalies in my life suddenly made absolute sense — right down to the smallest detail — my life changed for the better.

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