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reference materials
The EDSers United Foundation Research Library for EDS
source: EDSers United
summary/abstract:The following information made available by the dedicated volunteers of EDSers United is for self-education only. EDSers United has made the following documents/PDFs available to you in order to provide you with resources and information that you can utilize for healthy discussions with yourself and your support system. Our main focus is to keep you informed. The following literature does not reflect any of the beliefs and/or recommendations of EDSers United. You are responsible for what you choose to do with the information and resources made available to you.
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When your illness has been ruling your life without you knowing itThree days before my 30th birthday, I hi...
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Myocardial Infarction Resulting from Coronary Artery dissection in an Adolescent with Ehlers-Danlos Syndrome Type IV...Ehlers-Danlos syndrome encompasses a gro...
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A Framework for the Classification of Joint Hypermobility and Related ConditionsIn the last decade, growing attention ha...
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Ivar the Boneless: Did a Disease Cripple the Infamous VikingEhlers-Danlos syndrome is a connective t...
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HypermobileI'm Lia (she/her). I'm 29 and live just ...
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A Guide to Living with Ehlers-Danlos Syndrome (Hypermobility Type): Bending without Breaking (2nd edition)Covering everything from recognising sym...
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Vascular Ehlers-Danlos Syndrome; Brandi’s Storyhttps://www.youtube.com/watch?v=ZwnVAnN1...
