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When I Didn’t Want to Accept I Needed Help While Traveling With a Disability

key information

source: The Mighty

year: 2016

authors: Sara Sharpe


I was diagnosed with hypermobile Ehlers-Danlos syndrome (EDS), a genetic condition, in February of this year. While my illness has become a larger part of my day-to-day life in the last several years, it has always been there. EDS can present in a lot of ways, but for me it means that I live with intractable (constant) migraine with aura, occipital neuralgia, fibromyalgia, chronic fatigue, chronic neck pain caused by premature degeneration in my spine, asthma, gastrointestinal motility disorders, and suspected mast cell activation syndrome and dysautonomia among other things.

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