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patient education

The Constant Cycle of Anger About My Illness

key information

source: The Mighty

year: 2016

authors: Kaitlyn Brennan


This is the cycle of grief that occurs when you become chronically ill. You are forced to give up a lot and accept the lack of clarity for your future. Some of us give up hobbies, some of us give up jobs, and some of us give up dreams, but above all we give up the life we had.

Don’t get me wrong, you can still have a great life with a chronic illness. I have amazingly supportive friends, family, a boyfriend, and so many people who care about me. I have the opportunity to be a voice in the Ehlers-Danlos community, and I live a pretty good life overall. Some days I feel immense happiness. Those are the days where I realize that I am happier sick than I ever was when I was happy. Becoming ill so young has taught me a lot, and my biggest lesson that I learned was never to take anything for granted. I no longer worry constantly or dread huge life events because I don’t know how much time I have left, and I definitely know how fast life can change.

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