welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
patient education
The Battle Between New Friends, Ehlers-Danlos Syndrome and Guilt
source: The Mighty
year: 2017
authors: Sian Fiona Williams
summary/abstract:Friendship is a topic that always seems to give me heart palpitations! The chronic pain and tiredness that comes with Ehlers-Danlos syndrome leads to a constant battle in terms of friendship and the guilt I feel.
To start, it isn’t all bad! Making friends for me is the easy part. When you start a friendship I am normally in a setting I feel comfortable. For me, sitting either at work, at the pub, a coffee shop, or on the sidelines at a sports event. If I was having a flare-up I would be at home, so I am normally showing the best version of me at this point.
read moreexpertly curated content related to this topic
-
Invisible Disability: One Ehlers-Danlos Syndrome Sufferer’s Mission for AwarenessBranding fighters with nicknames is a cu...
-
Disabled woman, with Ehlers Danlos, humiliated by airport employee who refused assistance because she ‘didn...A disabled passenger has branded Stanste...
-
Overcoming Medical Obstacles and Disabilities in SchoolTaking good notes during a fast-paced le...
-
Fatigue is a Frequent and Clinically Relevant Problem in Ehlers-Danlos SyndromeOBJECTIVES: Ehlers-Danlos Syndrome (EDS...
-
Durham Teenager Trapped in Bedroom by Rare ConditionA teenager with a rare medical condition...
-
That Silver SpoonieHi, I'm a 23 year old Spoonie who's been...
-
It’s not in my Head’: Hope for Sufferer of Rare Joint DisorderGendi Roberts was just eight years old w...