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2017 EDS Global Learning Conference: Day 1 Wrap

To say that the 2017 EDS Global Learning Conference started off with a “BANG” would be the understatement of the century. The keynote session, by the profound Professor Rodney Grahame, was the perfect opening to the conference. When the crowd was asked how many were attending their first conference, the response was astounding with an overwhelming number of hands raised and a collective “wow!”

From the beginning of registration until the end of Day 1, the exhibit hall was absolutely packed with sponsors, exhibitors, and attendees alike. oneEDSvoice (that’s us below), SilverRing Splints, smartCRUTCH, youScript, Backpack Health, and more will be at the conference all week, as well as hosting an online presence, for patients, caregivers, and clinicians — each with the common goal of aiding patients with Ehlers Danlos Syndrome.

oneEDSvoice booth family and friends


My personal favorite session was hosted by Volunteer Patient Advocate, Maggie Buckley, as a discussion group for newly diagnosed patients and first-time attendees. But you didn’t have to be part either group to have learnt something new.

If you want to virtually follow the conference, follow us on Twitter @onevoiceworld or on Facebook @onevoice.world and we will be posting all day, every day of the conference! You can also track the conference by following the hashtags #oneEDSvoice, #EDS, and #DazzleVegas. If you are here at the conference, please stop by the oneEDSvoice booth and say hello!

For EDS’ers, from EDS’ers


Remember to register and join the community at oneEDSvoice.com to enter into our Raffle Basket Drawing – worth nearly $500! Here are just a few of the items in the basket:

Laptop Stand

Ehlers Danlos Syndrome Awareness Bracelet

Seaband Wristband

Mini Portable Fan

Zebra Pashmina Scarf

Cozy-Soft Microfleece Travel Blanket

Pain Relief Knee Pillow

You can increase your chances of winning by saying “hi” on our rareCourage community wall, or sharing in Facebook, Twitter or Instagram and tagging #oneEDSvoice. The more you post, the more times you’ll be entered. The drawing will be at 12pm on Saturday, September 9th.


2017 EDS Global Learning Conference

What to Expect at the EDS Global Learning Conference

Day 1 Conference Wrap

Day 2 Conference Wrap

Day 3 Conference Wrap

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