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  • At what age were you or your loved one officially diagnosed with Ehlers-Danlos Syndrome (EDS)?join now
  • How much time do you spend per week researching, discussing, participating in social media, etc., related to Ehlers-Danlos Syndrome?join now
  • Do you feel as though you are a stronger person as a direct result of your EDS experience?join now
  • Has EDS ever interfered with your work life or educational endeavors?join now
  • With what type(s) of EDS have you been diagnosed?join now
  • Have you been diagnosed with Dysautonomia? (Including Postural Orthostatic Tachycardia Syndrome, Neurocardiogenic Syncope, Orthostatic Intolerance, Familial Dysautonomia, Neurally Mediated Hypotension, Pandysautonomia, Autoimmune Autonomic Ganglionopathy, Multiple System Atrophy)join now
  • Have you been diagnosed with Chiari Malformation?join now
  • Have you been diagnosed with Cranio-Cervical Instability (CCI)?join now
  • In the past 30 days, how often did you experience a headache?join now
  • What is your experience with migraines?join now
  • Have you ever been genetically tested for Ehlers Danlos Syndrome? Why or why not?join now
  • Custom fieldjoin now