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Ehlers-Danlos Syndrom Riksförbundc/o Markus Otterloo
438 95 Hällingsjö
EDS Association is a non-profit organization that works to increase awareness of Ehlers-Danlos Syndrome (EDS) in society. An important part of the activity is to organize information meetings for members, the public, health professionals and other professionals. The union also gives members the opportunity to support each other by organizing membership activities – from coffee meetings to family weekends. EDS Association has been around since 1992. The number of members is over 700 (as on 2015).
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