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The Ehlers-Danlos SocietyThe Ehlers-Danlos Society Headquarters
1732 1st Ave. #20373
New York, New York
Email Phone Web
The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes and related disorders. They are a nonprofit organization, established in 1985 as the Ehlers-Danlos National Foundation by Nancy Hanna Rogowski (1957–1995).
They support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD (Hypermobile Spectrum Disorders) population. Their goals are world-wide awareness and a better quality of life for all who suffer from these conditions.
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