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EDSers United is a nonprofit organization operating as a public charity, incorporated within the state of New Jersey. It is run by a dedicated team of volunteers passionate about serving the rare disease community through established mission and purpose statement.
To advance research, improve diagnostic tools, establish efficacious and cost-effective treatment and management protocols for underserved rare genetic conditions, and provide high quality, comprehensive health and wellness services to the “whole,” medically complex patient in order to achieve a maximum level of wellness.
The clinical vision is to assist with complex rare genetic conditions, diseases, and illnesses and optimize outcomes by providing quality-driven, efficient and responsive health care services that meet the needs and expectations of the rare disease community it serves.
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