welcome to oneEDSvoice- a positively charged Ehlers Danlos Syndrome community.
- join today!
EDS Today outreaches to help those in a medical crisis obtain relevant medical information and to put them in contact with EDS specialists.
– Provide Ehlers-Danlos information, awareness, education, guidance and support for all those affected and also for their families, the general public and those in the medical community.
– Strive to bring recognition, identification and a correct diagnosis for ALL those affected. They are guided towards knowledgeable (skilled) medical professionals, appropriate treatments, preventive management, interventions and monitoring.
– Advocate, support, and provide assistance with medical crisis, facilitate networking and navigating the medical system. They help foster funds for vital EDS research projects that could help improve the future and quality of life for the EDS patient.
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