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community organizations

Vereniging van Ehlers-Danlos patiënten (VED)

PO Box 3071
1801 GB
Alkmaar, Netherlands
Phone   Web  

The Association was created to help people who are suffering with EDS. The association aims to gather and provide information on Ehlers-Danlos. It also acts as a point of contact for patients. In addition to peer activities, the association is active in:

-Provision of information for members and all other stakeholders
-Increasing awareness of the syndrome
-Encouraging relevant scientific research