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community organizations
The Association was created to help people who are suffering with EDS. The association aims to gather and provide information on Ehlers-Danlos. It also acts as a point of contact for patients. In addition to peer activities, the association is active in:
-Advocacy
-Provision of information for members and all other stakeholders
-Increasing awareness of the syndrome
-Encouraging relevant scientific research
expertly curated content related to this topic
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Little Zebras ; Life With Ehlers Danlos Type 3- “Hyper-mobility Syndrome”This group is meant for parents of child...
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Ehlers-Danlos Syndrome (EDS) Community (RareConnect)Ehlers-Danlos syndrome (EDS) is a geneti...
