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community organizations
The Association was created to help people who are suffering with EDS. The association aims to gather and provide information on Ehlers-Danlos. It also acts as a point of contact for patients. In addition to peer activities, the association is active in:
-Advocacy
-Provision of information for members and all other stakeholders
-Increasing awareness of the syndrome
-Encouraging relevant scientific research
expertly curated content related to this topic
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Ehlers-Danlos Syndrome CanadaEhlers-Danlos Syndrome Canada provides k...
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Ehlers-Danlos Support Group of North FloridaThis group is for people with EDS that l...
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Yin Yang Zebras – Alternative positive support for EDS Ehlers DanlosA positive safe place for people to disc...
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Fort Wayne Ehlers Danlos Syndrome/ And Or Chiari Malformation ConnectA place for locals or nearby to connect ...
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@ZebrafishspoonyI am a real life zebra! I have Ehlers-Da...
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Christina DohertyChristina is a 21 year old girl living w...
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Michele LazorMichele Lazor was diagnosed at 19 years ...