welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
The Association was created to help people who are suffering with EDS. The association aims to gather and provide information on Ehlers-Danlos. It also acts as a point of contact for patients. In addition to peer activities, the association is active in:
-Advocacy
-Provision of information for members and all other stakeholders
-Increasing awareness of the syndrome
-Encouraging relevant scientific research
expertly curated content related to this topic
-
Ehlers-Danlos Support Group of North FloridaThis group is for people with EDS that l...
-
Ehlers-Danlos Syndrome (EDS) Support of Northern CaliforniaThis group is for EDS patients and their...
-
Charity Auction for Ehlers Danlos SyndromeThis is a charity auction to raise aware...
-
Ehlers Danlos SyndromeThis is a support group for anyone effec...
-
Clinici Ehlers Danlos Italia (CEDI)CEDI is an association of NGO National b...
-
Sen. Wiley Raises Awareness of Ehlers-Danlos Syndromehttps://www.youtube.com/watch?v=JgtjnYUS...
-
Interview With Max Bronstein Of The EveryLife FoundationWe have a big innovation gap in this cou...