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community organizations
The Association was created to help people who are suffering with EDS. The association aims to gather and provide information on Ehlers-Danlos. It also acts as a point of contact for patients. In addition to peer activities, the association is active in:
-Advocacy
-Provision of information for members and all other stakeholders
-Increasing awareness of the syndrome
-Encouraging relevant scientific research
expertly curated content related to this topic
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Ehlers-Danlos Support Group of North FloridaThis group is for people with EDS that l...
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Ehlers-Danlos Syndrome (EDS) Support of Northern CaliforniaThis group is for EDS patients and their...
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Charity Auction for Ehlers Danlos SyndromeThis is a charity auction to raise aware...
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Ehlers Danlos SyndromeThis is a support group for anyone effec...
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Clinici Ehlers Danlos Italia (CEDI)CEDI is an association of NGO National b...
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Sen. Wiley Raises Awareness of Ehlers-Danlos Syndromehttps://www.youtube.com/watch?v=JgtjnYUS...
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Interview With Max Bronstein Of The EveryLife FoundationWe have a big innovation gap in this cou...
