Vereniging van Ehlers-Danlos patiënten (VED) | oneedsvoice

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Vereniging van Ehlers-Danlos patiënten (VED)

Gooimeer 4-15 - 1411 DC
Naarden, Netherlands
Phone   Web  

The Association was created to help people who are suffering with EDS. The association aims to gather and provide information on Ehlers-Danlos. It also acts as a point of contact for patients. In addition to peer activities, the association is active in:

-Advocacy
-Provision of information for members and all other stakeholders
-Increasing awareness of the syndrome
-Encouraging relevant scientific research

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