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community organizations
The Association was created to help people who are suffering with EDS. The association aims to gather and provide information on Ehlers-Danlos. It also acts as a point of contact for patients. In addition to peer activities, the association is active in:
-Advocacy
-Provision of information for members and all other stakeholders
-Increasing awareness of the syndrome
-Encouraging relevant scientific research
expertly curated content related to this topic
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Tom Query, MDiv, LPCTom Query is an experienced counselor/th...
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#Spoonie...
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Maryland, DC, and Virginia Ehlers-Danlos(and related conditions) GroupI wanted a place for all us locals to co...
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Ontario Announces New Clinic for EDS, Expands Other Clinics for Rare DiseasesThe Ontario government said Monday that ...
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@LaraBloomEDSInternationally raising awareness of Ehl...
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Katy Brennan – Ehlers-Danlos Syndrome, POTS, and MigrainesKaitlyn Brennan is a high school student...
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India’s Ehlers Danlos Syndrome/Hypermobility Syndrome CommunityThis group is for people who are diagnos...
