welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
community organizations
Chiari & Syringomyelia Foundation
29 Crest Loop Staten Island, 10312New York, New York
United States
Phone Web
CSF (Chiari & Syringomyelia Foundation, Inc.) is a non-profit organization that was founded in October 2007 with the goal of raising awareness and finding a cure for Chiari malformation (CM), syringomyelia (SM) and related disorders.
CSF is currently the only organization serving patients with Chiari, syringomyelia and related disorders to have earned all three of the following distinctions: BBB Wise Giving Alliance Seal, Guidestar Gold Seal and the Health On the Net Code.
The Foundation often supports patients with EDS because many patients have both.
expertly curated content related to this topic
-
Patient Education Program and Ehlers-Danlos Syndrome (PREDUSED)The Ehlers-Danlos Syndrome (SED) compris...
-
Ehlers-Danlos Support UK – AberdeenWelcome to the Ehlers-Danlos Support UK ...
-
EDS Today AdvocatesOur Mission is to provide Ehlers-Danlos ...
-
Christina Dohertyhttps://www.youtube.com/channel/UCjDwOr6...
-
Ehlers-Danlos WorldwideWelcome! I don't feel we need rules. I j...
-
Ehlers Danlos Syndrome and RecoveryWelcome to Ehlers Danlos Syndrome and Re...
-
Ehlers-Danlos Support UKEDS UK, a charity raising awareness of E...