welcome to oneEDSvoice- a positively charged Ehlers Danlos Syndrome community.
- join today!
Annabelle’s Challenge is the leading charity for vascular Ehlers-Danlos syndrome in the UK. We also provide support globally.
The aim of Annabelle’s Challenge is to raise awareness, support patients and families affected by vascular EDS and to encourage the medical profession to progress further with research into finding a cure.
Education: To advance the education of the general public and medical profession in all areas relating to vascular Ehlers-Danlos syndrome.
Research: The relief of sickness and preservation and protection of good health by the provision of funding for the development of research and early diagnosis of vascular Ehlers-Danlos syndrome.
Support: To promote and protect the physical and good mental health of sufferers of vascular Ehlers-Danlos syndrome through the provision of financial assistance, support, education and practical advice.
expertly curated content related to this topic
Tom Query, MDiv, LPCTom Query is an experienced counselor/th...
@karolynprgQueer Disabled Artist, Writer + Activist...
The One Piece of Advice Anyone With Illness Should RememberBefore my diagnosis, doctors visits wher...
Ehlers-Danlos Society Receives Transformational Gift to Accelerate Genomic Research into Hypermobile EDSThe Ehlers-Danlos Society has announced ...
My Invisible Cosmic Zebra Has Ehlers-Danlos Syndrome—Now What?If you've ever felt overwhelmed or cluel...
Ehlers Danlos and POTS Group!This group is for people who suffer from...
Linda Kenward: Patients must be Helped to Feel Safe in a Healthcare SettingDoctors generally know about patient saf...