welcome to oneEDSvoice

- a positively charged Ehlers Danlos Syndrome community.
  • join today!

EDS is a part of me, A part of my life and despite all of the problems, the pain, the endless fatigue, the tears, the sleepless nights, and the fact that as soon as I learn to manage one thing another one pops up! I wouldn’t change it for the world. I have met amazing people, I’ve found my dream career I’m re-training to be an OT, I’ve played wheelchair basketball in landmark events, I’m working with the HMSA as a Local group leader and I’ve made the best friends I’ve ever had and found the most supportive community I could wish for. I am still learning to manage my health, I might not ever get the hang of it but while I’m learning I am hoping to raise awarness, If just one person learns something from my experiences then job done! Visit www.hypermobility.org for more information or drop me a message if you want to know more. This photo generated a fantastic response on Facebook when the HMSA shared it, lets keep it going!