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• evidence & education
  Having Ehlers-Danlos Syndrome with family in town for the holidays

  The holidays are something most people l...
• evidence & education
  When Strangers Judge Me for Sitting Down in a Random Place

  I have a genetic condition called Ehlers...
• social & media
  Melanie Welcomed Home from Spinal Surgery in Barcelona

  A 27 year-old from Cramlington says she ...
• news & meetings
  9 year old with Ehlers Danlos Syndrome signs contract to become an honorary member of the Northern Kentucky Universi...

  Two sisters, 7 and 9, signed national le...
• social & media
  How EDS has Turned Me into a Super Hero!

  Like most superheroes, I found my powers...
• social & media
  Wheelchair Life WIth Ehlers Danlos Syndrome

  I am at the point with my eds that it lo...
• social & media
  Admitting I’m scared of my future with Ehlers Danlos Syndrome

  In the last couple of years as I’ve le...