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• rareHub
  Angiotensin II Receptor Blockade in Vascular Ehlers Danlos Syndrome (ARCADE)

  This study aims to verify the hypothesis...
• social & media
  Admitting I’m scared of my future with Ehlers Danlos Syndrome

  In the last couple of years as I’ve le...
• evidence & education
  Vascular Type Ehlers-Danlos Syndrome is Associated with Platelet Dysfunction and Low Vitamin D Serum Concentration

  BACKGROUND: The vascular type represent...
• news & meetings
  Heartbroken parents lose their third child to vEDS and now fight for awareness and training

  The family first lost 16-year-old Charlo...
• social & media
  Joint Hypermobility Syndrome (Ehlers-Danlos): What Causes The Pain?

  Are you so flexible you can do tricks? D...
• evidence & education
  Vascular Type Medical Resource Guide

  VEDS is caused by structural defects in ...
• social & media
  DEFY Foundation

  The DEFY Foundation is a recognized 501(...