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• evidence & education
  Three Cases Exhibiting the Ehlers-Danlos Syndrome

  Mrs. W., aged 51 (mother), Miss W., aged...
• rareHub
  Riboflavin Corneal Crosslinking for Brittle Cornea Syndrome and Ehlers-Danlos Syndrome Type VI

  Brittle Cornea Syndrome and Ehlers-Danlo...
• evidence & education
  Mutations in FKBP14 Cause a Variant of Ehlers-Danlos Syndrome with Progressive Kyphoscoliosis, Myopathy, and Hearing...

  We report on an autosomal-recessive vari...
• news & meetings
  Heartbroken parents lose their third child to vEDS and now fight for awareness and training

  The family first lost 16-year-old Charlo...
• rareHub
  Patient Education Program and Ehlers-Danlos Syndrome (PREDUSED)

  The Ehlers-Danlos Syndrome (SED) compris...
• social & media
  Ehlers-Danlos Syndrome (Laura Tietz)

  ...
• social & media
  Ehlers Danlos Syndrome (Anna G.)

  Living with Ehlers Danlos Hypermobility ...