welcome to oneEDSvoice
- a positively charged Ehlers Danlos Syndrome community.- join today!
- login
Shani Weber
Community Advocate Local Groups and Outreach Liaison Helpline Advisor
The Ehlers-Danlos Society Headquarters
P.O. Box 87463
Montgomery Village, Maryland, United States
Shani Weber is the Local Groups & Outreach Liaison for the Ehlers-Danlos Society. No longer able to continue her career as a Special Education Teacher due to her Hypermobile EDS, she became a volunteer with the Ehlers-Danlos Society in 2012. Shani is the moderator for the Ehlers-Danlos Society’s support community on Inspire and assists patients and doctors from around the world who contact the Helpline. She is also a patient advocate for the organization, speaking with national and state government representatives and the medical community about EDS and issues that concern us. Additionally, Shani co-founded and co-leads the Maryland EDS support group which now has over 350 members. Shani received her Master’s degree in Early Childhood Special Education and in Early Childhood Development from the George Washington University and her Bachelor’s degree in Elementary Education from Old Dominion University.
expertly curated content related to this topic
-
Do Support Groups Really Help People With Chronic Illness?I’m sure that in future years to come ...
-
Ehlers Danlos Outside of the Box!Ehlers Danlos: Out of the Box! is a live...
-
Wheelchair Life WIth Ehlers Danlos SyndromeI am at the point with my eds that it lo...
-
Center For Ehlers Danlos Syndrome AllianceCEDSA is all about the patient, their ca...
-
Ehlers-Danlos Syndrome–advice on the best way we get our joints backEhlers-Danlos Syndrome is a connective t...
-
My Invisible Cosmic Zebra Has Ehlers-Danlos Syndrome—Now What?If you've ever felt overwhelmed or cluel...
-
Tournament Raises Awareness for Connective Tissue DisordersPeople gathered Saturday with temperatur...