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community advocates

Michele Lazor

Community Leader
Patient Advocate
St. Louis, Missouri, United States

Michele Lazor was diagnosed at 19 years old with Ehlers Danlos Syndrome after being misdiagnosed and incorrectly treated for several years. She has since become a passionate advocate, educator and administrator of online support groups. She studied at the Mayo Clinic’s Pain Rehabilitation Center, in addition to conducting her own research, as so many patients do. Several hundreds of EDSers worldwide currently follow Michele seeking support and education through her online Facebook community.

Before Michele’s declining health forced her into disability, she was a pre-kindergarten teacher and full-time student studying elementary education. Michele decided to turn to alternative and holistic therapeutic options in an attempt to improve her quality of life after spending five years on bed rest, unable to travel without the aid of a wheelchair, or a cane when she was feeling adventurous. While Michele still suffers from the daily physical limitations caused by Ehlers-Danlos Syndrome, she has found happiness, resilience, and hope which she shares with other EDSers struggling with accepting the limitations of the condition. She encourages self advocacy and has found her calling through encouraging her followers to never give up on themselves or their dreams.

“Life with an invisible, rare, chronic illness is hard, and no one should have to do this alone. We are all in this together, and as a whole we Will make a difference.”

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