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community advocates

Lynn Sanders

Community Leader
Founder and President
Ehlers-Danlos Syndrome Network C.A.R.E.S. INC
P.O. Box 66
Muskego, Wisconsin, United States

Lynn Sanders is the Founder/President of Ehlers-Danlos Syndrome Network CARES Foundation. She started the EDS Foundation as she was so tired of watching so many of her EDS friends pass away from mainly the Vascular Type of EDS. The foundation only has volunteer staff. Not one person gets paid for working at EDS Network CARES Foundation. EDS Network CARES Foundation funds various research projects and helps educate EDS patients, their families, the healthcare community and the public about this very under diagnosed disease. For Lynn, her family’s love and support have made it possible for her to do the ceaseless hours of volunteer work that requires more time than she is willing to admit. She is always available to lend whatever support that is necessary whether it is to individuals, family members or to those organizations that she is affiliated with. Lynn’s family has seen her through numerous surgeries and hospitalizations and are extremely understanding of the time elements involving her volunteer work. In the rare moments that Lynn is not volunteering she manages to find time for her love of photography and GEO caching.

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