welcome to oneEDSvoice- a positively charged Ehlers Danlos Syndrome community.
- join today!
President Massachusetts Chapter of the Marfan Foundation
Founder and Head, EDS New England/Massachusetts Support Group
Boston, Massachusetts, United States
Jonathan Rodis, who lives with Marfan Syndrome, is the President of the Massachusetts Chapter of the Marfan Foundation. He also founded and chair two Physician Awareness Committees, one for Marfan syndrome and Related Disorders and the other specifically for Ehlers-Danlos syndrome. He also founded and Head the EDS New England/Massachusetts Support Group to provide awareness, support and initiate/promote research for everyone with Ehlers-Danlos syndrome. He chooses name Team Tall to represent many of his Marfan and related connective tissue disorder family and friends throughout New England who have played an integral part in the Marfan Foundation’s Fight for Victory journey.
expertly curated content related to this topic
Ehlers-Danlos Zebra Pals- The Zeal ConnectionWe are a community of people with or aff...
15 Things Adults With Ehlers-Danlos Syndrome Wish Their Parents Had KnownFew people are familiar with Ehlers-Danl...
Zebra to Zebrahttps://www.youtube.com/user/EDSzebra2ze...
Washington State Ehlers-Danlos Support GroupOpen to current (adult) residents of Was...
Our Stories of Strength – Living with Ehlers-Danlos SyndromeAn inspirational collection of stories, ...
Shani WeberShani Weber is the Local Groups & Ou...