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community advocates

Emily Muller

Community Leader
Speaker, Blogger
Founder, Emily’s Fight
Chicago, Illinois, United States

Emily Muller established herself as a prominent activist in the rare disease community when she launched Emily’s Fight, an awareness campaign, at the age of thirteen. Although she never expected her passion project to gain an international following, she tries to put it to good use. Never afraid to talk about taboo subjects, Emily frequently addresses young adult issues and the mental health effects of serious illness. She has spoken at such events as TEDx, the Global Genes Patient Advocacy Summit, SHINE, and the Starlight Children’s Foundation Midwest Gala. She has also contributed written pieces to The Mighty and To Write Love On Her Arms. When she’s not doing advocacy work, Emily enjoys acting in film projects local to the Chicago area, cult classic movies, and trying (unsuccessfully) to bring back 90s trends.

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