welcome to oneEDSvoice- a positively charged Ehlers Danlos Syndrome community.
- join today!
Christina is a 21 year old girl living with EDS and its associated conditions, who loves to paint and draw when her body allows. She hopes to return to education and work in the medical field. She spends a lot of time painting, making YouTube videos and reaching out to other patients online; she says, “advocacy, support, and awareness are three things that are very close to my heart”.
Christina was a competitive gymnast as a child, and always knew that she was flexible; as she was surrounded by very flexible people and sporting injuries, she never thought she was hypermobile. It was not until she was 11 years old that she started to show the real symptoms of EDS. At age 16, she was diagnosed with Chiari Malformation, subsequently corrected with a surgery. After noticing alarming symptoms and research through internet, she convinced her parents to get her genetics tested and she was finally diagnosed with EDS and POTS. Since her diagnosis, she has under gone 9 brain and spinal surgeries to hold her spine together and relies on countless medications to function properly, nebulizers, treatments and home IV saline infusions.
expertly curated content related to this topic
The ILC FoundationThe ILC is a national peer-to-peer-focus...
@AJsChallengeUK registered charity supporting patient...
Ehlers-Danlos Support Group Buddy SystemThis group is for the members of the Ehl...
Ontario Announces New Clinic for EDS, Expands Other Clinics for Rare DiseasesThe Ontario government said Monday that ...
Ehlers-Danlos Syndromes (Inspire)Ehlers-Danlos support group and discussi...
Zebra Butterflies (Ehlers-Danlos Syndrome and Narcolepsy)Narcolepsy and Ehlers-Danlos Syndrome ar...