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Markus-Frederik Bohn, Ph.D
ResearcherDepartment of Pharmaceutical Chemistry
University of California in San Francisco (UCSF)
San Francisco, California, United States
Isabelle Brock, MD
ResearcherGERSED ( groupe d’études et de recherche syndrôme d’Ehlers-Danlos)
Health center Argouges
42 rue Beauvais 14400 BAYEUX
Paris, France
Peter H. Byers, MD
ResearcherDepartment of Pathology
University of Washington School of Medicine
HSB-Room H-564
1959 NE Pacific St.
Seattle, Wisconsin, United States
Harry C. Dietz, III, MD
ResearcherJohns Hopkins University
The Johns Hopkins Hospital (Main Entrance)
1800 Orleans St.
Sheikh Zayed Tower
Baltimore, Maryland, United States
Adam D Farmer, PhD, FRCP
ResearcherUniversity Hospital of North Midlands (UHNM) NHS Trust
County Hospital, Weston Road
Stafford, United Kingdom
Lawrence Afrin, MD
Healthcare ProviderDivision of Hematology, Oncology and Transplantation
University of Minnesota
420 Delaware Street SE
MMC 480
Minneapolis, Minnesota, United States
Patrick S. Agnew, DPM
Healthcare ProviderCoastal Podiatry Group
6477 College Park Sq Ste 106
Virginia Beach, Virginia, United States
Cynthia Allen, GCFP, STMI
Healthcare ProviderFuture Life Now
4138 HAMILTON AVE
Cincinnati, Ohio, United States
Richard W. Barnum, MD
Healthcare ProviderThe Coalition Against Pediatric Pain (TCAPP)
PO BOX 1433
Marshfield, Massachusetts, United States
Jaime F. Bravo, MD
Healthcare ProviderLuis Thayer Ojeda 0115
Of. 303, Providencia
Metro Tobalaba, North exit
Santiago, Chile
Clive W. Bridgham, DC
Healthcare ProviderBarrington Chiropractic & Sports Medicine Clinic
282 County Road
Barrington, Rhode Island, United States
Carol Boggs, M.AmSAT
Patient Support Professional8701 Georgia Avenue
Suite 406
Silver Spring, Maryland, United States
Jeannie Di Bon, MA, PMA-CPT
Patient Support ProfessionalCreate Pilates Limited
1 Lambton Rd
Wimbledon, United Kingdom
Steven Freeman, MPT, ATC, CHT
Patient Support ProfessionalPivot Physical Therapy
844 Professional Center
844 Washington Road, Suite 101
Westminster, Maryland, United States
Linda Neumann-Potash
University of Nebraska Medical Center42nd and Emile
Omaha, Nebraska, United States
Eric S. Palmer, BOCO, BOCP
Patient Support ProfessionalPedorthic Technologies Inc. (PTI)
The Kraemer Building
2905 Post Road
Warwick, Rhode Island, United States
Ann Rodiger, M.AmSAT
Patient Support ProfessionalBalance Arts Center
151 W. 30th Street 3rd Floor
New York, New York, United States
Lara Bloom
Community LeaderThe Ehlers-Danlos Society
Office 7, 35-37 Ludgate Hill
London, United Kingdom
Nadia Bodkin, PharmD, MS
Community LeaderEDSers United
10 Schalks Crossing Road
Suite 501-283
Plainsboro, New Jersey, United States
Maggie Buckley
Community LeaderAcademy of Integrative Pain Management
PO Box 1293
Alamo, California, United States
Cincinnati Children’s – The Connective Tissue Clinic
MLC 40063333 Burnet Ave.
Cincinnati, Ohio
United States
email phone website
Ehlers Danlos Syndrome National Diagnostic Service
North West Thames Regional Genetics Centre (Kennedy Galton Centre)Level 8V
Northwick Park and St Mark's Hospitals
Watford Road, Harrow
United Kingdom
email phone website
MidAtlantic Urology Associates, LLC
7500 Greenway Center Drive, 8th FloorGreenbelt, Maryland
United States
phone website
Sheffield Children’s (NHS)
Sheffield Children's HospitalWestern Bank, Sheffield
United Kingdom
email phone website
The Metropolitan Neurosurgery Group, LLC
1010 Wayne Avenue, Suite 420Silver Spring, MD
United States
phone website
Atlantic Ehlers-Danlos Syndrome Society (AEDSS)
229 Greenwood AvenueTimberlea, Nova Scotia
Canada
email website
Center for Ehlers-Danlos Syndrome Alliance (CEDSA)
Center for Ehlers Danlos Syndrome Alliance Inc.4805 Hospital Dr
Cass City, Michigan
United States
email phone website
Chiari & Syringomyelia Foundation
29 Crest Loop Staten Island, 10312New York, New York
United States
phone website
Clinici Ehlers Danlos Italia (CEDI)
CEDI - Clinical Ehlers-Danlos Italy OnlusVia Trieste, 1-21051 Arcisate (VA)
Italy
email phone website
