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Markus-Frederik Bohn, Ph.D

Department of Pharmaceutical Chemistry
University of California in San Francisco (UCSF)
San Francisco, California, United States

Isabelle Brock, MD

GERSED ( groupe d’études et de recherche syndrôme d’Ehlers-Danlos)
Health center Argouges
42 rue Beauvais 14400 BAYEUX
Paris, France

Peter H. Byers, MD

Department of Pathology
University of Washington School of Medicine
HSB-Room H-564
1959 NE Pacific St.
Seattle, Wisconsin, United States

Marco Castori, MD, Ph.D

Sapienza University of Rome
Piazzale Aldo Moro 5
Rome, Italy

Harry C. Dietz, III, MD

Johns Hopkins University
The Johns Hopkins Hospital (Main Entrance)
1800 Orleans St.
Sheikh Zayed Tower
Baltimore, Maryland, United States

Adam D Farmer, PhD, FRCP

University Hospital of North Midlands (UHNM) NHS Trust
County Hospital, Weston Road
Stafford, United Kingdom
view all (14)

Lawrence Afrin, MD

Healthcare Provider
Division of Hematology, Oncology and Transplantation
University of Minnesota
420 Delaware Street SE
MMC 480
Minneapolis, Minnesota, United States

Patrick S. Agnew, DPM

Healthcare Provider
Coastal Podiatry Group
6477 College Park Sq Ste 106
Virginia Beach, Virginia, United States

Cynthia Allen, GCFP, STMI

Healthcare Provider
Future Life Now
791 E McMillan Street, Suite 230
Cincinnati, Ohio, United States

Richard W. Barnum, MD

Healthcare Provider
The Coalition Against Pediatric Pain (TCAPP)
PO BOX 1433
Marshfield, Massachusetts, United States

Jaime F. Bravo, MD

Healthcare Provider
Luis Thayer Ojeda 0115
Of. 303, Providencia
Metro Tobalaba, North exit
Santiago, Chile

Clive W. Bridgham, DC

Healthcare Provider
Barrington Chiropractic & Sports Medicine Clinic
282 County Road
Barrington, Rhode Island, United States
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Carol Boggs, M.AmSAT

Patient Support Professional
8701 Georgia Avenue
Suite 406
Silver Spring, Maryland, United States

Jeannie Di Bon, MA, PMA-CPT

Patient Support Professional
Create Pilates Limited
1 Lambton Rd
Wimbledon, United Kingdom

Steven Freeman, MPT, ATC, CHT

Patient Support Professional
Pivot Physical Therapy
844 Professional Center
844 Washington Road, Suite 101
Westminster, Maryland, United States

Linda Neumann-Potash

University of Nebraska Medical Center
42nd and Emile
Omaha, Nebraska, United States

Eric S. Palmer, BOCO, BOCP

Patient Support Professional
Pedorthic Technologies Inc. (PTI)
The Kraemer Building
2905 Post Road
Warwick, Rhode Island, United States

Ann Rodiger, M.AmSAT

Patient Support Professional
Balance Arts Center
151 W. 30th Street 3rd Floor
New York, New York, United States
view all (7)

Jaquie Blake

Community Leader
United States

Lara Bloom

Community Leader
The Ehlers-Danlos Society
Office 7, 35-37 Ludgate Hill
London, United Kingdom

Nadia Bodkin, PharmD, MS

Community Leader
EDSers United
10 Schalks Crossing Road
Suite 501-283
Plainsboro, New Jersey, United States

Maggie Buckley

Community Leader
Academy of Integrative Pain Management
PO Box 1293
Alamo, California, United States

Christina Doherty

Community Leader
United States

Victoria Graham

Community Leader
The Zebra Network
Maryland, United States

view all (14)

Cincinnati Children’s – The Connective Tissue Clinic

MLC 4006
3333 Burnet Ave.
Cincinnati, Ohio
United States
email   phone   website  

Ehlers Danlos Syndrome National Diagnostic Service

North West Thames Regional Genetics Centre (Kennedy Galton Centre)
Level 8V
Northwick Park and St Mark's Hospitals
Watford Road, Harrow
United Kingdom
email   phone   website  

Mayo Clinic

13400 E. Shea Blvd.
Scottsdale, Arizona
United States
phone   website  

MidAtlantic Urology Associates, LLC

7500 Greenway Center Drive, 8th Floor
Greenbelt, Maryland
United States
phone   website  

Sheffield Children’s (NHS)

Sheffield Children's Hospital
Western Bank, Sheffield
United Kingdom
email   phone   website  

The Metropolitan Neurosurgery Group, LLC

1010 Wayne Avenue, Suite 420
Silver Spring, MD
United States
phone   website  
view all (7)

Annabelle’s Challenge

Europa House, Barcroft Street
Bury, United Kingdom
email   phone   website  

Atlantic Ehlers-Danlos Syndrome Society (AEDSS)

229 Greenwood Avenue
Timberlea, Nova Scotia
email   website  

Center for Ehlers-Danlos Syndrome Alliance (CEDSA)

Center for Ehlers Danlos Syndrome Alliance Inc.
4805 Hospital Dr
Cass City, Michigan
United States
email   phone   website  

Chiari & Syringomyelia Foundation

29 Crest Loop Staten Island, 10312
New York, New York
United States
phone   website  

Clinici Ehlers Danlos Italia (CEDI)

CEDI - Clinical Ehlers-Danlos Italy Onlus
Via Trieste, 1-21051 Arcisate (VA)
email   phone   website  

DEFY Foundation

P.O. Box 3386
West Chester, Pennsylvania
United States
email   website  
view all (25)